Sunday 1 June 2014

Vaguely Vegan

For years rejection was the word that struck fear into my heart, literally and figuratively speaking.  In terms of transplant terror, risks went something like this:

REJECTION

INFECTION


Everything Else




Now the terror looks like this:



REJECTION
DIABETES -> KIDNEY FAILURE

INFECTION



Everything Else


After a massive dose of steroids at the beginning of my second of year of teaching (October 2005), my blood sugar rocketed and it took me weeks to stabilise it, although I managed that without the aid of medical intervention.  Ok, that's a small porky, I had one shot of insulin when I was drip-fed the Solu-medrone. By this stage we knew I only had around 35% kidney function left.  Dodgy kidneys, high blood pressure, an iffy second ticker that was starting to fur up, pre-diabetes and a truck load of scary drugs all roll together to make a pretty picture in transplant terms and I knew that the day of scoffing what I fancied was coming to an end.

Rather surprisingly, it's taken nine years to get to this stage.  I have generally looked after myself, taken my medication, eaten (reasonably) well, exercised (until recently) and just got on with things.  I think the Epstein Barr has quickened the onset, as I can't walk  much and I am not always capable of preparing food.  Then, in April of this year, I found out my glucose level had been systematically high on non-fasting bloods at Harefield over the last year - or thereabouts.  A specialist in Diabetes beckons.

With all this in mind, I have decided to try something rather radical - in the short term at least.   Over the last week I have more-or-less cut all animal products out of my diet and so far, I am shocked at the difference to my blood glucose.  Where I was scoring 8-11 every morning, I am now always below 7 now and usually it's between 5-5.5 - Normal!  I've taken my glucose reading upon waking up, two hours after breakfast, before lunch and two hours after lunch.  I've just taken it before supper tonight.  I've not had one reading today above 8.8.  It was heading up to 14, 15 quite regularly.  It seems to be dropping down a little further each day.

I know I cannot maintain this diet permanently, but I have two months before I get to the specialist for Diabetes.  Can I get a handle on this so that I can stay free of another drug?  Even if I only delay it by 6 months, that will be a bonus.

So, why Vaguely Vegan?  Well, I know it is probably not a practical lifestyle in terms of my transplant, although a plant based diet seems to currently agree with me:
  • there is a huge list of things I must not eat/must avoid  
  • I shouldn't really eat the vegan stock replacement item - soya (or any of the associated items) as the pain of gout is PHENOMENAL - and is linked to kidney damage/diabetes etc.
  • I have to go easy on a lot of the secondary vegan replacement items - beans and pulses as they can hasten kidney damage in patients with pre-existing conditions.  Yes, you'd have to eat stacks of them, but I am playing cautiously in the traffic; this is my life I am talking about, not an inconvenience out of choice.
  • I have to be careful not to overdo the Potassium, Phosphorous, salt, sugar and fat
  • I'd never eat out socially again - balancing the needs of my body, with the transplant and the vegan lifestyle would be horrific.
  • I'd be too stressed every time I went to mum's and it would be a nightmare for her
  • The transplant team probably would not endorse such a change in my lifestyle at this stage.  I've gone some distance doing what I do.  Let's not rock the boat, eh?
What does that mean in terms of this entry?  Well, for the next two months I will be sticking to a broadly vegan menu.  Once I see my glucose level bottom out, then I will have evidence to stick under a doctor's nose.  However, if I eat some dairy by mistake or by design, or I'm handed a dinner that's meat based, then I will use it as an opportunity to see how my body reacts - I'm on a rather sharp learning curve at the moment.  I'm simply not going to prepare myself animal based meals, but what happens elsewhere is subject to debate.  Vegan at home, omni outside.  This is probably also a bit better as far as my concerns for animal welfare.

On the 10th July I face my MOT at Harefield.  I want my level down and steady by then.  I suspect I'll be advised to eat fish a couple of times a week (I think that will make me a Pescetarian, rather than just plain pesky), use butter over margarine and maintain eggs.  This information comes from overhearing other conversations in the hospital  - a little dangerous, granted, as we are all very different and then one always needs to factor in the transplant...but that said, if veganism is the ONLY way to keep my glucose down, then I will do it and the chooks will be chirping too.

NOTHING ON THIS PLANET 
makes me like the sound of:
 dialysis 
losing my sight
having a kidney transplant
amputation etc.

In the meantime, I am making a big fat chocolate brownie to take into Uni tomorrow.  You never know, it may the last one I eat.

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